It was a scorching day in June when my mom decided to let go of this world, and heat radiated off the parking lot asphalt surrounding the nursing home. It was Saturday, and I was thinking about the dirty dishes that seemed to persistently reside in the kitchen sink. My mom had been in the nursing home for almost two months. Prior to her moving to the nursing home, she had lived with my fiancé, my three-year-old son, and myself. Health issues were always prevalent in my mom’s life, but everything accelerated in those last years until she was suffering from kidney failure, cirrhosis of the liver, and out of control diabetes.
“What’s Gabriel and David up to today?” my mom tried to shift herself in bed to a more comfortable position, edging her body to the side while grimacing, and then turning to her back, inch by inch. Her pillow fell to the laminate floor.
“Oh, they’re just hanging out at home.” Leaning over from the hard metal folding chair, I grabbed her pillow from the floor and, very cautiously, started to ease it behind her back. Her bed sores were unbearably painful.
She moaned, and began crying when the pain refused to subside. I took her hand and stroked it. The bones in her hand still had the same density as when I was younger and grasping her hand while we rocked back and forth along the light rail tracks. But it wasn’t the same hand. This hand I now held was pitted and scratched, from the constant skin irritations the medicine caused. Her blue veins snaked under the surface, rubber tubes that became almost impenetrable from the scarring of the ever-present I.V.’s. The deterioration of this hand showed how much it had aged in these last years. Barely fifty-one, my mom had traveled roads not even many ninety-year-olds could boast of.
Memories are sometimes slanted, written down in the archives of our minds as we want to remember them. After my mom and dad divorced, my five-year-old brain would reinvent what took place. Instead of my mother driving off down the street in her dented, rusty car, having said a quick, tearful good-bye, she would instead get in her car, but be unable to bring herself to drive away without me in the seat next to her. I cannot picture any particular moment in my younger years where it was obvious that my mom suffered mentally, or physically, from the alcohol or drug use. She was careful to hide the darker side of her existence from me.
No, my memories of my mom were rosy, tinted with sunny days spent in the park, bowls of bubble gum ice cream, repeated viewings of The Sound of Music, and trips to that magical, awe-inspiring building, the downtown library. Our periods together were cemented in schedules written by court mediators, but these short moments were saturated in fun and acceptance. After my dad remarried when I was eight, my home became an uncertain place, one where up was down, and down was up. My step-mother suffered from schizophrenia, undiagnosed at the time. The weeks began to stretch out forever, bleak and painful, and the bi-weekly visits with my mom were beacons of light in a tumultuous sea. Knowing I was unhappy tortured my mom, and she’d go to great lengths to make my visits with her comforting and safe. Eventually, when I was thirteen, she won custody of me. But even now, I can still remember the yearning I felt waiting for those weekend visits.
Around lunch time, the doctor came by for his daily visit. He asked the usual questions, but when he began to go over her medication, my mom’s crying commenced again, growing into a torrent.
“Mom, what’s wrong?” I asked, alarmed. She turned her face to me, and the utter dejection exposed there tore at my heart.
She turned to the doctor and stated clearly, “I don’t want to take my meds anymore. And I don’t want to do dialysis anymore.”
“But mom!” I ripped my gaze away from her now stubborn face to look at the doctor in appeal, expecting his adamant refusal. But he just studied her for a long moment without speaking.
“Do you know what that means?” He finally asked, quietly setting his clipboard down and examined her eyes, pushing her eyelids up to inspect the whites, then pulling her lower lids down to expose the crimson tinted rims.
“Yes,” she still sniffled, but her voice came out more steadily.
“Why don’t you talk with your daughter for a while? I can let you miss one dialysis treatment, but that’s all. I’ll come by a little later.” He turned and walked to the next bed.
“Mom, if you stop taking your meds, you’ll lose it again, just like the last time. And if you stop going to dialysis, a whole lot more is going to happen.”
Tears leaking unnoticed from the corners of her eyes, my mom seized my hand with a strength fired by desperation. “I know honey. But you don’t understand how much pain I’m in. The meds make my stomach hurt all the time, I can’t walk anymore so the bed sores are only getting worse, and the pain of getting out of bed and into a wheelchair to go to dialysis is too much. I can’t take it anymore.”
I didn’t understand until later what her decision truly meant. I thought of the immediate repercussions, but also the undeniable relief for my mom. The medication she took helped eliminate the poisons in her body that her liver would normally take care of, but it would slough everything that her body had out, giving her constantly stabbing stomach cramps. When the toxins took over her body from the lack of the medication, her mind was always the first to go. I didn’t want to have her mind go hazy again, knowing that when I visited her next, I might only appear as a shadow on the wall of her psyche, no more familiar to her than the fly buzzing by the window. But I also knew the stomach pain was driving her crazy. I had seen with my own eyes what the bed sores looked like, oozing and pernicious. That would drive anyone to make unbearable decisions.
We decided I would come by Sunday morning with the pastor, so we could have a prayer. We didn’t really go to church, but my mom had always been a spiritual person. That spirituality is what aided her in her fight against her dependencies. A prayer was just what she needed.
When the pastor and I came the next morning, the effect of not taking her meds was already becoming apparent. I could sense she knew who we were, but she wasn’t very coherent in her words, mumbling more than actually forming full sentences. The pastor and I took her hands and we prayed. I kissed her forehead and said good-bye, feeling selfish because I wanted her to reply with her usual, “When are you gonna bring my grandbaby?”
Even though the illness overtook her soon after Gabriel was born, my mom was still able to form a special bond with my son. She called herself Nana, saying no one under the age of sixty should be called Grandma, that the title Grandma would multiply her gray hairs tenfold. She took great pleasure in reading Goodnight Moon to him, never tiring if he asked her to repeat the story, patiently turning the cardboard pages back to the beginning, as if she had all the time in the world. Blurry, indistinct moments with her grandchild were not an option. After she entered the nursing home, her sadness at no longer seeing Gabriel everyday would imprint itself on my heart for a long time.
Monday night, when I got home from work, I was bone weary, spent from a long day of trying to answer calls from customers annoyed with the responsibilities of paying utility bills, and fielding calls from nurses at the nursing home. Feeling saintly, I kissed my family good-bye and drove the ten minutes to the nursing home to have a short visit with my mom.
When I arrived, the room my mom shared with two other residents was quiet. One was reading the newspaper while the other slept. There in the middle bed lay my mom. I knew something was different the moment I saw her. She lay propped up so that she could rest on her side, with pillows supporting her back so that the bed sores would not get irritated by the friction of the sheet. This was normal. But the moment I looked in her eyes, I knew my mom was no longer there. She looked at me, then through me, like I was just another blurry object she couldn’t wrap her mind around any longer.
I grabbed a stool, then changed my mind and sat very carefully on the bed. Taking her hand, I whispered, “Mom?”
She turned her head slightly at the sound of my voice, but she couldn’t acknowledge me. Her mind was almost gone, wandering the hazy landscape of dementia. The change in her in the last two days was heart-wrenching. I can’t believe it happened so fast. Saturday, we were talking about what classes I would sign up for in the fall semester at the local community college. Then yesterday, when the pastor came to visit, we could barely get any coherent words out of her. And today, this vacant gaze, her blue eyes barely blinking, her face void of emotion.
The driving need to reassure her broke upon me, a crashing wave of fear and desperation. Even if she couldn’t grasp that I was in the same room with her, I had to try. I laid my hand on her head, stroking her forehead and brushing her hair back like she used to do for me during the many nights when, as a child, I burned up with fever from yet another childhood illness.
The song came to me, in a bubble of inspiration that popped in my mind.
“When you’re down and troubled, and you need some loving care,” I sang softly, urging her crumbling mind to hear my love, even if understanding my words was beyond her grasp. “And nothing, nothing is going right.”
Gripping her hand more firmly, I continued, “Close your eyes and think of me, and soon I will be there…to brighten up, even your darkest nights.”
It didn’t matter that my voice hitched and caught as I sang. It didn’t matter that there were two other people in the room, with nurses coming in and out like worker bees. It didn’t matter that I couldn’t carry a note to save my life. All that mattered at this moment was that my mom understood, truly understood on the deepest, most basic, and most intimate level that I was here with her, that I would traverse this foggy plain with her, to the best of my ability.
“You just call out my name, and you know wherever I am, I’ll come running…to see you again.” Tears pricked my eyes, and I blinked furiously to keep them at bay. This was not the time to lose it.
“Winter, spring, summer, or fall, all you have to do is call, and I’ll be there…You’ve got a friend.”
I wish I could say that, miraculously, like something out of a Hollywood movie, my mom finally blinked her eyes, looked at me, and spoke, and everything would turn out fine. But even though I was singing to my mother like we were in some badly written musical, this wasn’t a movie; this was as real as it could get. The disease that ravaged her body would not release her so easily.
But even something as minute and fleeting as a smile can be called a miracle.
When my mom finally took control of her life and checked herself in to a six-month chemical dependency program, I was sixteen, and naïve. The facility required that we stay there for the duration of the program, so I was a first hand witness to what drugs and alcohol could do to the lives of the addicts, and those who were closest to them. Instead of shadowing my image of my mom, these new insights allowed me to have a better understanding of the sacrifices she made for our small family. Even seeing her like this, seeing what her life choices did years later to her physical body, I could still appreciate her strength and courage. While some set themselves on pedestals for never making a single mistake in life, my mom traveled to that dark side, and then she clawed her way out, no matter how difficult it proved to be.
As I sat on her bed and sang to her, the tears started rolling, unhindered. I thought I had come to terms with the fact that I was losing her. I thought I had asked my questions and accepted the answers, and had made the decision with her to let nature take its course. But all of a sudden, I was more scared than I had been during the three long years I had been taking care of her when her illness took over her life.
I started running through all the things in my head that I should have thanked her for. For never letting her addictions and struggles stop her from trying to be my mom. For standing up for my right to live in a home without fear, anger or violence. For finally attacking her demons head-on so that she could build a better life for us. For being my best friend.
How could I let her go, when I never told her the most important truths of all? That she taught me to be a strong, independent woman, who would walk through the bowels of hell before she let anyone harm her family. That the journeys I’d travelled with her during her long struggle with her addiction would always be life lessons, ones that taught me to value and respect myself. That I wouldn’t be the mother I am today, if I hadn’t had the kind of relationship with my mom that I did, where unconditional love and acceptance was given freely, along with hugs and laughter and hope.
As I sang the final verse of “You’ve Got A Friend,” I had my head bowed, unable to halt the tears from streaming down my cheeks, then wetly splashing on my arm. So I jumped when I heard a gasp next to my ear. My mom’s nurse stood peering over my shoulder, staring wide-eyed at my mom. Afraid to look and see she was truly gone, I turned my head slowly, taking great care to swivel my head a millimeter at a time. To my amazement, she lay there, still breathing, in no way changed from the previous minute, except for one minor, yet monumental detail. Her eyes had shifted just a fraction in my direction, and a soft smile played across her lips. Quickly swiping the tears from my eyes with the back of my hand, I held my breath, wondering if anything else had changed that I had yet to comprehend. But she stayed just as she was, with her eyes slightly turned in my direction, and a smile so serene, so peaceful, curving on her lips, that I couldn’t help but smile back.
I stayed until midnight. Driving home through the deserted streets, the image of my mom laying there with her peaceful expression was emblazoned in the back of my gritty eyes. Laying my head on my pillow, sleep found me at once, not as elusive as I imagined it would be. I missed the phone call that said my mom passed in the early morning.
When I woke up to the voice message from the nurse telling me the news, the grief was there in full force. No matter how much time you have to prepare, the loss can still paralyze you. I imagined trying to tell my three-year-old that Nana was gone. I dreaded making all those phone calls to family members and friends, of being the deliverer of the worst news possible. I sat cross-legged on the living room floor, the cell phone cradled in my lap, feeling the grief envelope me, a damp cloak of mourning. But along with the mourning, there was also the small relief of gratitude. I was grateful that I had the chance to see my mom the night before she passed. I was grateful that I had not wasted that final visit with trivial tasks like balancing my checkbook, or reading my mail. I will always be grateful for those last hours spent with the woman who gave me everything.
And I was grateful that, in the space of a few minutes, I had sung a simple song by Carole King, a singer my mom and I shared a penchant for. While I had internally ravaged myself with regrets, the song had pierced the mist she was lost in. In one brief moment, I had unconsciously given my mom the gift that I thought I had uncaringly withheld from her. My thanks.